Hard Days

I haven’t posted an update on Luke in a while and I’m sorry for that. Life has been busy lately. People tend to forget that just because Luke is in remission doesn’t mean that the battle is over. While Luke has been doing fairly well so far this year it hasn’t been all sunshine and daisies. He had a flare up of graft versus host disease (GVHD) earlier this year. This is when the new stem cells that Luke received attack the old cells. This can lead to things like rashes, stomach issues, and other more serious problems. Luke is fortunate that he only developed a rash. The doctors put him on a steroid and when this didn’t fully help they put him back on the anti-rejection meds. The rash seems to be under control now which is good so they are working on tapering him off of the steroid and hopefully the anti-rejection med next.

Unfortunately about a month ago Luke hurt his back and this threw everything out of wack. At first it was his upper back between/under his shoulder blades. After a little over a week of pain I was able to convince him to start physiotherapy. After a couple sessions the pain was starting to subside. We were even able to get out for a walk last weekend.

Well Tuesday when Luke was going to sit down, his back started to spasm and he was in extreme pain. This time the pain is. in his lower back around his left hip. I was able to get him to PT that day and he was feeling okay during the day, but since Tuesday night his back has been spasming any time he tries to move. The last 2 days he has been bed ridden. I stayed home to help him yesterday as he could not even move around in bed let alone get up and walk around without causing a spasm.

Today he got seen at urgent care on recommendation from his oncologist. They just wanted him to get checked out to make sure it’s nothing worse than a muscle strain and hopefully get some relief from the pain so he can relax and heal. They did an x-ray and there is no sign of any fractures or anything more serious. They could tell that the muscles on the left were pulled tightly because it is causing a bit of scoliosis in his spine. They agreed that it’s just going to take some time to heal so he will continue to do physiotherapy and work on stretching and strengthening his core once he is through this storm. For now lots of rest, meds, and love.

Thank you for listening and we will keep you updated as we go.

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