Dear Diary Day 1

So I am making yet another blog post because frankly, sitting in a hospital bed while the whole world is in isolation is quite boring. So far today I have have lots of blood taken, eaten breakfast, walked 32 lengths in the hallway (24 lengths = 1 Km I am aiming for 2 Km a day while I have the energy so that I can stay strong), had a nap, received cryo-precipitate (aka plasma to help my blood clot), done one medium, one hard, and one loco Sudoku, eaten lunch, and built a tower out of my pill cups.

To help with my boredom I am going to start a virtual diary of my life here in the hospital and possibly after as I navigate the course of going from cancer caregiver/ wife to cancer patient. Treatment hasn’t started yet because they are running a test on my bone marrow to see whether or not I carry the Philadelphia chromosome, a genetic mutation that can cause the white blood cells to become cancerous. Whether I am positive for this gene or not will affect the treatment regimen I am started out on. I likely won’t get the results of that test until Tuesday. In the meantime I am getting high doses of steroids in the mornings (100 mg Prednisone for my pharmacy phriends out there) and that has some anti-leukemic effect as well. I also get acyclovir twice a day to prevent a nasty viral infection and I am getting pip/tazo, an antibiotic, IV to get rid of whatever potential infection I came in on. (should be nearing the end of that soon though).

I am humbled by the outpouring of love, prayers, thoughts, well wishes, and offers to help from everyone. Thank you to all who have reached out and shared our story. This gets a little bit more real for me every day but I am doing my best to stay upbeat. I still worry more about Luke and how he is doing at home. I miss my husband and I miss my fur babies. During the time that I was stuck at home in bed with a fever Penny wouldn’t leave me alone, constantly next to me even when I pushed her away. Even Zoey was being especially calm around me and giving me so many extra kisses and snuggles. I would give anything to have them here with me now. I got to see Luke for 24 hours before Luke got to go home, it was bittersweet. I am happy that he is well enough to be able to go home and continue to recover, but I miss him terribly and just want to be chatting away with him about absolutely nothing and everything. The staff here are all so wonderful that I don’t feel as alone even though no visitors are allowed though, and I am thankful for them

On that note I am going to sign off for now and maybe rest or watch TV or do some reading (I found The Hobbit in the library here so that’ll keep me busy). I don’t know what to expect in the coming weeks or how my body will handle treatment once it begins, but I am doing my best to stay strong so that I can put my all into the fight ahead.

Love, LB

Throwback to Summer 2015 when our biggest obstacles were dating long distance and bumping noses when we kissed (still have that one though)

p.s. Silver lining, I grew!! Haha, they measured me at 161 cm tall which is 5 feet and 3.4 inches I don’t know how that happened but I have been 5 foot 2.5 inches (maybe 5′ 2.75″ on a good day) for years now, so maybe the cancer has made me grow (or their measuring device is off), either way I’ll take it!

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