It’s been a long couple days

As the title suggests the last few days have felt quite long and I have not had the mental stamina to keep up with sharing with all of you.

As my blood counts began to drop I started to get some side effects. Some too personal to share publicly, a lot of fatigue, a fever, and mouth pain. Swallowing became difficult which made eating difficult. Most of my meds got switched over to IV to help give my mouth a break.

I could barely keep my eyes open the last few days because I needed morphine for some of the pain I was experiencing. I would wake up to half finished half garbled text messages or having dropped my phone on the floor for the 67th time.

When I spiked a fever they took blood cultures and immediately started me on antibiotics and an anti fungal. Nothing has grown so far and so I’m down to just two antimicrobials a day now. Friday was not a good day for me. I had some areas that needed to be assessed by an outside consult. During this consult it was determined a biopsy should be done, but it went downhill from there. I won’t go into details because it is a sensitive subject and my emotions and pain are still quite raw, but all I want to say is that the team here on GD6 are so incredible and made me feel so safe and protected in a situation that could have been avoided. They are continuing to do everything they can to make sure the incident doesn’t go unreported.

On a positive note, since my counts are trending upward, my mouth is healing and I no longer need to rely on IV medication or fluids as much. It has been nice getting some pole-free time. Yesterday and today I have gotten a lot of walking done in the halls. Feels good to stretch my legs, but my back is really feeling the stiffness of being in a bed so much. The plan is to get get PT up here tomorrow to give me some good strengthening and stretching exercises moving forward.

Another good thing is that I was talking with one of my doctors and since my counts are recovering so nicely, they will most likely be doing another bone marrow biopsy later this week to get an idea of whether or not I’m going into remission. Who knows, if all goes well I may be busting out of here sooner than planned.

I’m not going to get my hopes up too high though just yet. I still have more chemo and a long road ahead, but I’ll be taking it all day by day and doing my best to keep up my positive attitude and hopefully getting some stylish Headwear!!

Love, LB

Happy post Mac n cheese face
Double serving of creamy Mac n cheese and brussel sprouts 🥰
My blood counts with today’s bump highlighted

6 thoughts on “It’s been a long couple days

  1. Continued prayers for strength ! You got this Hun ! So sorry it’s been rough ! Keep up the good thoughts ! Xo 😘 Kathy Priolo

    Like

  2. Sounds like really rough days. Hopefully things are on the upswing now and you will be able to go home soon. Like the headwear!

    Like

  3. Have been following your blog and am so impressed with your positive spirit and your openness to sharing your journey. It’s one step at a time until you do bust out of there. Wishing you the best!

    Like

  4. So sorry to hear it’s been such a rough few days for you, Lindsey. I think you’re doing so well to take it one day at a time and allowing yourself to feel the highs and lows. I’ll be thinking of you and hoping that you have a better few days. XXX p.s. that mac n cheese really does look delicious! I can totally understand your post eating happy face! 🙂

    Liked by 1 person

  5. Hey Lindsey I started following your news via your blog, and I appreciate that you shared your latest news for everyone. I am sorry to hear that you have gone through rough days, and I hope that you will be feeling much better very soon. Please let me know if you need anything for yourself or Luke, and I will do my very best. My thoughts and pray will be with you and Luke all the time.

    Like

  6. Lindsey, in my 78 years I have never personally been through cancer/chemo procedures so I certainly cannot even begin to understand how difficult your path is at the moment. But what I do understand is just how hard you are trying to beat this horrible disease. If I could, I would hold your hand, look into your beautiful eyes and tell you how much I care and love you and how much I hope for very positive outcomes for both you and Luke. Thank you so much for sharing both the highs and lows, that we might better understand and appreciate your accomplishments.

    Like

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s