As the title suggests the last few days have felt quite long and I have not had the mental stamina to keep up with sharing with all of you.
As my blood counts began to drop I started to get some side effects. Some too personal to share publicly, a lot of fatigue, a fever, and mouth pain. Swallowing became difficult which made eating difficult. Most of my meds got switched over to IV to help give my mouth a break.
I could barely keep my eyes open the last few days because I needed morphine for some of the pain I was experiencing. I would wake up to half finished half garbled text messages or having dropped my phone on the floor for the 67th time.
When I spiked a fever they took blood cultures and immediately started me on antibiotics and an anti fungal. Nothing has grown so far and so I’m down to just two antimicrobials a day now. Friday was not a good day for me. I had some areas that needed to be assessed by an outside consult. During this consult it was determined a biopsy should be done, but it went downhill from there. I won’t go into details because it is a sensitive subject and my emotions and pain are still quite raw, but all I want to say is that the team here on GD6 are so incredible and made me feel so safe and protected in a situation that could have been avoided. They are continuing to do everything they can to make sure the incident doesn’t go unreported.
On a positive note, since my counts are trending upward, my mouth is healing and I no longer need to rely on IV medication or fluids as much. It has been nice getting some pole-free time. Yesterday and today I have gotten a lot of walking done in the halls. Feels good to stretch my legs, but my back is really feeling the stiffness of being in a bed so much. The plan is to get get PT up here tomorrow to give me some good strengthening and stretching exercises moving forward.
Another good thing is that I was talking with one of my doctors and since my counts are recovering so nicely, they will most likely be doing another bone marrow biopsy later this week to get an idea of whether or not I’m going into remission. Who knows, if all goes well I may be busting out of here sooner than planned.
I’m not going to get my hopes up too high though just yet. I still have more chemo and a long road ahead, but I’ll be taking it all day by day and doing my best to keep up my positive attitude and hopefully getting some stylish Headwear!!