Okay I’m just going to rant for a bit because I’m in pain and frustrated.
The pegaspargase chemo I got has given me pancreatitis. After 24 hours of fasting they put me on clear liquids and then advanced me to a regular diet. I was feeling good and excited to be possibly coming home today after my lumbar puncture.
Well I woke up this morning and my enzymes were again elevated and my bloating and pain are back. I’m so uncomfortable. If they need to keep me another night or so that’s fine. But man I wish I knew how to get rid of this discomfort.
Anyone I know dealt with pancreatitis and have tips on relieving the pressure and pain, foods to avoid, comfortable positions, etc?
2 thoughts on “Pancreatitis Rant”
All I have to contribute is LOVE…I wish I had a medical background to be able to make some suggestions. Pain is so hard to deal with but keep asking everyone what they can do for you, if necessary request a pain management specialist for a consult. The squeaky wheel and all that! Hope you were well enough for a visit from Luke! Give him some of my ove as well. Cathy
Good morning. I hope you are doing better already. I’m sorry to hear what you all are going thru. This reply is a couple days late and I don’t know if I have any answers. A little about myself. I’m Jaime and am 29. I was diagnosed with ALL 3 years ago and am done treatments now for a full year and am doing well. I had some difficulty’s with the drug asparaginase in my treatment and i developed a severe case of pancreatitis. I feel for you as I was in a lot of pain and felt miserable. I remember starting with foods with very low fat was important , the slightest bit of fatty food would set it off. And lots of morphine helped me get thru the worst of it. I wish you courage and a healthy future.
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