Today was the first day of my final round of intensification! While I still have a long way to go, this is a big milestone.
This morning my friend Evelien drove me to drop Zoey at daycare before bringing me to my appointment. I get a lot of anxiety before my lumbar punctures and since I was due to get one today I took some anti-anxiety medication to keep me calm. This makes me extra sleepy so I’m thankful I have friends willing to drive me.
Fortunately the lumbar puncture today went very smoothly and there were no issues. He got it on the first try and I barely felt it. This was followed up by my IV chemo that only took a few minutes. Off to a good start. Now I have two weeks of oral chemo, five days of steroids, and weekly methotrexate (MTX). Because I’ve been getting migraines consistently since starting the MTX they decided to decrease my dose by 50% to see if that will help.
On April 1st I’ll be getting a bone marrow biopsy to check the status of my leukemia. I’ll be able to confirm if I am still in remission and they will send a sample off to test for minimal residual disease (MRD). This test looks for any remaining leukemia cells in the marrow that may not show up in standard tests. It can take a couple weeks to get this back so we are doing soon so that we can make sure that we go into maintenance therapy with the best plan.
As long as all goes well I will start maintenance when this round ends in three weeks. This phase is similar to what I’m doing now but at lower doses and should be more tolerable. Unfortunately I’ll have to go through this for the next two years or so, but I’m looking forward to hopefully getting back to a sense of normalcy.
I treated myself and my friends to some doughnuts today as a thank you for bringing me too and from these appointments and being such wonderful friends. They are even picking up Zoey from daycare for me so I could spend the day resting flat. I’m so thankful to have them in my life.