December 1st

It’s the last month of 2020. It’s hard to believe that this year is almost over. It has felt like the longest year of my life and yet it has flown by. So much has happened I can’t even begin to muddle through it all.

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There Are No Words

It has been a while since I have written a blog post. To be honest, I’m not even sure if I’ll finish this one. I’ve had writers block these last two months and with my parents and Luke’s family here I really just wanted to be present while I had them around.

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I Don’t Know Where to Start

I’ve been putting off writing this blog post for a couple weeks now. My heart and my head feel like they are drowning.

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Vulnerable

I’ve had quite a lot of writers block this past week as I started my first round of intensification treatment. I like using my blog to keep everyone updated, but it is also a good therapeutic outlet for me. Writing allows me to get my thoughts and feelings out of my head and sharing them usually helps to ease some of my anxiety.

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CNS Phase complete!

I haven’t updated a whole bunch on my blog lately because the CNS phase of treatment was definitely rougher on me than I anticipated.

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What’s Next?

I have been home for almost a week now and it has been so nice! It’s amazing the difference a good night sleep in your own bed can do.

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Baby Steps Forward

So far this process has been a lot of sitting around and waiting for answers, running tests, and keeping me comfortable. With not much moving forward it is definitely easy to fall into denial.

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Finally Getting Started

It’s been a long time since my last blog update. We have been so busy the last few months between my crazy work schedule, Luke’s transplant being repeatedly delayed, all of the COVID-19 chaos, and getting a puppy.

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Finally!

Luke officially has a donor!!!

We got the news last week that a willing donor is a 10/10 match for Luke. This is such good news and helps us to feel a bit of hope again. Likely he will be getting his second stem cell transplant at the end of January.

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Not The Answers We Wanted

It is hard to write this update today as we have answers, but they aren’t the answers we were hoping for. I promised to keep everyone updated as we learned more about what is going on with Luke so here is what we have learned.

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