One year ago today I received my diagnosis that I had B-cell Acute Lymphoblastic Leukemia. One year ago my world completely changed and turned upside down. One year ago I went from a caregiver to a patient.Continue reading “One Year Cancer-versary”
Today did not go quite as planned. Doesn’t mean it was all bad though.Continue reading “An Unexpected Day”
Sorry for my silence the last day or so. The lows are finally starting to hit and I’ve had a rough day. Some of my meds can make you have to go while others make it harder to go to the restroom. They try to manage with laxatives but it is a balancing act.
This morning the I was finally able to go but not without a lot of pain (I apologize for the TMI but there’s no better way to explain what’s going on) losing all the fluid has messed with my body. They have been giving me fluids all day long to try and get my blood pressure back up but I can’t really stand more than a minute without feeling faint.
So today begins some of the downward trend of good days as my body gets hit by the chemo. I’ve basically been resting in bed all day. It took a while but I was finally able to eat a little toast and Jam and feel more comfortable in bed. The only way to describe it is 100% pure exhaustion. I can barely keep my eyes open even while typing this.
Please bare with me as I navigate these more difficult days. They say that this next week will be one of the harder ones as my counts continue to drop.
Well that’s all for now as typing isn’t the easiest when you keep falling asleep. It’s even hard to stay awake for Kevin Bacon in footloose! One of the greatest movies ever.
I had my first set of chemotherapy yesterday so I was definitely nervous for what today would bring. In pharmacy school we learn all about the possible side effects from the many different anti-cancer drugs. There are so many it’s nearly impossible to keep straight.Continue reading “So Far So Good”
Today officially started off the treatment for my leukemia. I am currently getting some more cryoprecipitate (plasma) to help with my blood clotting ability because my fibrinogen is low. Later on today I will be getting the first of many lumbar punctures and starting my chemotherapy regimen.Continue reading “First Day of Treatment”